Advocacy Resources & BRCA Clinical Trial Reference, FORCE

IMPROVING THE LIVES OF INDIVIDUALS AND FAMILIES FACING HEREDITARY CANCER

Resource Category: Helpful Links

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BRCA & Genetic Discrimination

The National Institute of Health (NIH) provides an overview of the Genetic Information Nondiscrimination Act (GINA), implications, and other applicable laws that affect privacy and rights for individuals with BRCA.

Resource Category: Laws & Protection

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BRCA & GINA: Genetic Information Nondiscrimination Act

GINA: What is it? How does it apply to men with BRCA? How is it defined by law? How does GINA apply to health insurance? How does GINA apply to employment? Learn all the essential information about GINA and review common questions about your rights.

Resource Category: Laws & Protection

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BRCA & IVF: The Oncofertility Consortium

In vitro fertilization (IVF) with preimplantation genetic testing for monogenic disorders (PGT-M) can help men with BRCA gene mutations avoid passing the mutation to their children. The Oncofertility Consortium shares fertility resources for patients undergoing cancer treatment.

Resource Category: Fertility

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BRCA Exchange

The BRCA Exchange is a single comprehensive source and global public repository and collection of BRCA1/2 genes. This site is hosted by the Global Alliance for Genomics and Health and is supported by the NIH “Big Data to Knowledge” Program.

Resource Category: BRCA1/BRCA2 Genes, Provider Tools

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BRCA Facts

Close to 1 million people in the United States are estimated to have a BRCA mutation, but less than 10 percent are aware that they have a mutation that increases their risk for cancer. Visit this resource to help understand all the facts about BRCA.

Resource Category: Education, Genetic Testing

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BRCA Guidelines Brochure for Men

This brochure is a companion piece to the peer-reviewed medical white paper, which was published on July 25, 2024, by JAMA Oncology titled, BRCA1, BRCA2 and Associated Cancer Risks and Management for Males. This reference guide provides information for men with BRCA mutations and provides guidance on preventing cancer. Click the button below to access the brochure.

Resource Category: Genetic Testing

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BRCA1 and BRCA2 and Associated Cancer Risks and Management for Males

Kara Maxwell, MD, PhD, Men & BRCA Program Director at the Basser Center, discusses the latest research developments on BRCA mutations in men at the Annual Male Breast Cancer Global Alliance Conference in 2023.

Resource Category: BRCA1/BRCA2 Genes

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Cancer Genetic Testing: Webinar for Physicians and Other Healthcare Providers

Basser Center Executive Director Susan Domchek, MD, presents a webinar on cancer genetic testing for physicians and other healthcare providers. She discusses genetic testing for cancer predisposition syndromes; panel testing including BRCA and other genes; genetic research updates, and more.

Resource Category: BRCA1/BRCA2 Genes, Genetic Testing, Pancreatic Cancer, Prostate Cancer, Provider Tools, Research/Clinical Trials

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Clinical Trials for Men with BRCA

FORCE in a national non-profit catering to the hereditary cancer community. Learn more about the benefits of enrolling in clinical trials and how BRCA carriers can sign up. Visit their website to learn more about clinical trials, risk management and treatment, support, and learn more about public policy issues affecting BRCA carriers.

Resource Category: Public Policy, Research/Clinical Trials

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CureBRCA Research Program

The BRCA Research & Cure Alliance (CureBRCA) is pleased to announce that it will begin to accept funding applications starting January 3, 2025, through March 15, 2025.

Resource Category: Education, Genetic Testing, Research/Clinical Trials

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Direct-to-Consumer BRCA Genetic Testing

It is best to obtain genetic testing through your doctor so that you have access to a genetic counselor. However, there are other options available. Learn more about direct-to-consumer genetic testing by visiting one such as Color.

Resource Category: BRCA1/BRCA2 Genes, Genetic Testing

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DO YOU HAVE IT? Find out if you are at risk for having an inherited mutation in the high-risk cancer genes, BRCA1 and BRCA2

A short online “quiz”, created by the Basser Center for BRCA, that helps determine if you are at risk for prostate cancer.

Resource Category: BRCA1/BRCA2 Genes, Prostate Cancer

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Educational Resources & Support, Sharesheret

Those who carry mutations in these genes can make choices that can improve the ability to find cancer at an earlier stage.

Resource Category: Helpful Links, Support for Men with BRCA

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Federal Laws & Protections

Overview of health insurance protection, medical leave, non-discrimination and other laws that protect people with hereditary cancer.

Resource Category: Laws & Protection

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Federal Public Policy Initiatives

Federal public policy initiatives that impact the hereditary cancer community.

Resource Category: Public Policy

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Fertility

The Oncofertility Consortium maintains a national database of healthcare providers with expertise in fertility preservation and treatment of people who are diagnosed with cancer or at high risk for cancer due to an inherited mutation.

Resource Category: Education, Fertility

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Fertility Considerations for Reproductive-Aged Carriers of BRCA

Explore considerations for reproduction-aged carriers in this peer-reviewed medical paper published by The American Society of Clinical Oncology (ASCO): Fertility Considerations for Reproductive-Aged Carriers of Deleterious BRCA Mutations: A Call for Early Intervention

Resource Category: Fertility

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Fertility, The Oncofertility Consortium

Each patient is unique. The impact of a given treatment on fertility can vary and so can the time available before starting life saving treatments.

Resource Category: Helpful Links

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Find a Genetic Counselor

To find a genetic counselor in your area, you can visit the National Society of Genetic Counselor's website. The Find a Genetic Counselor directory offers access to over 3,300 genetic counselors (US and Canada). You have options for in-person or telehealth counseling.

Resource Category: Genetic Testing

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Genetic BRCA Testing for Men

Basser Center for BRCA

Resource Category: Helpful Links

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Get Tested

Taking control of cancer — with you at every step - color.com

Resource Category: Helpful Links

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Guidelines for Genetic Testing – NCCN

National Comprehensive Cancer Network

Resource Category: Helpful Links

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Hereditary Cancer and Men with BRCA

Men with BRCA can access various education resources, ask questions to a genetic counselor, and gain support by joining communities hosted by Sharsheret, a national non-profit organization.

Resource Category: BRCA1/BRCA2 Genes, Genetic Testing, Prostate Cancer

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Introduction to Genetic Testing: Pancreatic Cancer & BRCA

Germline genetic testing for cancer susceptibility is currently recommended for pancreatic cancer due to potential implications for targeted therapies and risk assessment of family members. Learn more about the hereditary link to pancreatic cancer, in this video created by Basser Center for BRCA.

Resource Category: Genetic Testing, Pancreatic Cancer

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Legal protections, GINA

The Genetic Information Nondiscrimination Act of 2008 (GINA) is a federal law that protects Americans from discrimination based on their genetic information, and applies specifically to health insurance and employment.

Resource Category: Helpful Links, Provider Tools

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National Comprehensive Cancer Network (NCCN) – Recently Updated Guidelines

The NCCN produces guidelines for cancer screening and prevention. Access the most updated guidelines for treatment of cancer by type, by visiting their website.

Resource Category: Prostate Cancer, Provider Tools, Research/Clinical Trials, Support for Men with BRCA

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One-on-One Cancer Support Community, Imerman Angels

Provides free, personalized one-on-one cancer support for cancer fighters, survivors, previvors and caregivers.

Resource Category: Helpful Links

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One-on-One Cancer Support for Men with BRCA

Imerman Angels provides free, personalized one-on-one cancer support for cancer fighters, survivors, previvors and caregivers. Visit their website to be matched to other men with BRCA related cancers.

Resource Category: Support for Men with BRCA

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Preimplantation Genetic Testing, American Society for Reproductive Medicine

Your trusted source for accurate and up-to-date information on reproductive health, fertility, contraception, and pregnancy.

Resource Category: Helpful Links

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Prostate Cancer Genetics Podcast

The Prostate Cancer Genetics Podcast is hosted by Dr. Veda Giri and Dr. Stacy Loeb. This podcast discusses genetic counseling and genetic testing for prostate cancerand the impact of genetics for patients and their families. Episodes feature special guests including physicians, genetic counselors, patients, and family members.

Resource Category: Genetic Testing, Prostate Cancer, Support for Men with BRCA

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State Public Policy Initiatives

A comprehensive list of state legislative initiatives—affordable access to genetic testing, high-risk “supplemental” cancer screenings, fertility treatments and cancer therapies, banning genetic discrimination, etc.—representing the unique needs of individuals with or at risk of hereditary cancer.

Resource Category: Public Policy

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TARGET: A Genetic Education Webtool to Help Make an Informed Decision for Hereditary Prostate Cancer Genetic Testing

TARGET (Technology-enhanced acceleration of germline evaluation for therapy): This self-guided education web-tool's purpose is to help educate individuals about hereditary prostate cancer.

Resource Category: BRCA1/BRCA2 Genes, Genetic Testing, Prostate Cancer, Provider Tools

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The Effects of Cancer Treatment on Fertility

Overview of resources and clinical trials for individuals to consider before starting cancer treatment.

Resource Category: Fertility

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What is a Clinical Trial?

Clinical trials are research studies performed in people that are aimed at evaluating a medical, surgical, or behavioral intervention. They are the primary way that researchers find out if a new treatment, like a new drug, diet, or medical device is safe and effective in people.

Resource Category: Education, Genetic Testing, Research/Clinical Trials

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What is BRCA?

BRCA1 (BReast CAncer gene 1) and BRCA2 (BReast CAncer gene 2) are genes that produce proteins that help repair damaged DNA. Use this resource to understand more about BRCA.

Resource Category: Education

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What Is Genetic Testing for Hereditary Cancer?

Genetic Testing for Hereditary Cancer: A brief overview, produced by Yale Medicine.

Resource Category: Genetic Testing

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Who should get tested for the BRCA gene mutation?

An extended list of who should get tested for the BRCA gene mutation, and why

Resource Category: Genetic Testing

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